Friday, February 12, 2016

The Most Read Blog Post I've Written

Can I say I hate this post? I don't hate my words in it, they needed to be said but that was the problem in that it needed to be said. A tragedy induced this post and the all too happy media rushed to generalizations which I could not stand for. This post also ran in a couple newspapers as an op-ed post. I hope and pray that I never have to write something with so much fury towards misguided experts that put all people on the autism spectrum in a box and in a bad light:

Tuesday, December 18, 2012

An Open Letter to the Media


“Asperger Syndrome”— That’s what I saw on the news headline in bright, bold red letters on Friday. If I didn’t already know what it was because I have it I probably would have been afraid of it. In the article that followed the autism spectrum wasn’t properly explained and to the uninformed, the only thing to gather was that all things autism were dangerous.
 
What is being left out of the conversation is that those were Asperger’s, and other autism spectrum disorders, are far more likely to be a victim of a crime than the one committing it. And often times the person on the spectrum will not speak up about it because of communication issues.

What is also being left out of the conversation is perhaps the most important line about the autism spectrum and that is, “If you’ve met one person with autism you’ve only met one person with autism.” It is dangerous and irresponsible to generalize autism like I have heard in the past few days. Each person on the autism spectrum can be radically unique to the next. Myself, I’m a public speaker and yet the next person you meet with Asperger’s may have a difficult time engaging in a one-on-one conversation. I heard one speaker on the news say that ALL people with Asperger’s are great in math. This too is untrue, some can be, and may be amazingly good at it, but others may be more of an abstract thinker and be good in the areas of music and art.

The true problem with generalizing is not for those of us who know we have it now but for those that are undiagnosed. I’m 29 now and got my diagnosis at the age of 20. I didn’t know what it was so I looked it up on the internet and read that, “people with Asperger Syndrome will never have a job, never have friends, and will never be happy.” Sadly, I believed those words and my life was destroyed for over a year as I descended into the deepest abyss of depression you could imagine. However, I discovered writing as a means to express myself and learned that those hideous, hopeless words were a complete lie, but what about those who are getting their diagnosis now? And for younger children, how open will parents be to hearing that their two or three year old has, “Asperger Syndrome.” What will their reaction be? Will it be, “Wait, Asperger’s, isn’t that…”?

To be honest, I have turned off the coverage because I’ve heard too many generalizing facts and doomsday reports on Asperger’s. I know parents of children are worried about the backlash because I’ve been contact by many expressing their fears and you know, if the general public hears the same information over and over it will become fact.

The tipping point for me was when I heard an expert say, “People with Asperger’s have no empathy or emotions.” While it is true that some may experience a lack of empathy, many of us, like myself, have it and on the topic of emotions I think we have more and feel more emotions than those not on the spectrum because it is so hard for us to express how we feel. Also, the world may take it that we have a lack of empathy as we may have a flat affect, meaning you can’t judge how we are feeling by our facial expressions but behind our cold exterior is a world of wondrous thought  going on as we try and process the world around us.

My motto is, “understanding is the foundation for hope.” Right now my heart aches for many reasons. The tragedy that occurred is beyond words. Moving forward though, at the way the media has portrayed Asperger Syndrome, what type of image will we have? Will we be feared as monsters? Will the friends that some of us have start to wonder about us? I feel those with Asperger’s have so much potential, but if the chasm of misunderstanding grows, the already difficult experience of growing up will become more difficult. I’ve been thankful the past two months to have spoken to over 5,000 students on the subject of Asperger’s and tolerance but that isn’t even a measurable fraction of the students in America and for some their first introduction to Asperger’s may be this tragedy.

So lost in this all is each person. If we generalize we are doing a disservice to each and every person who lives life on the autism spectrum. Maybe the news, when the time is right, will give the public a better view of the autism spectrum in all its glory, challenge, and mysteries. But above all else I hope the message is relayed that, “If you’ve met one person with autism you’ve only met one person with autism.

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