Thursday, July 28, 2022
Opening Moves
Wednesday, July 27, 2022
The finish line
Monday’s blog meant a lot to me. I wish you knew how much strength it takes to get through the day. There is little I can do or say to relay to you how exhausting it truly is. However, attempting to is the motivation because it is the ultimate goal; the finish line.
Having to attempt to fit into a box, so to speak, of what society expects is a challenge. This has to be done because we aren’t at a level of 100% autism awareness, but more importantly, 100% autism understanding.
When we get to that place, that place of a fully accepting society, the level of exhaustion and frustration will be less. It’s a possibility, I know it, that we can reach it. It’s a hope I have, and one I hope I can continue to do my part on this pathway to the finish line.
Monday, July 25, 2022
Don't Let Them See the Autism in Me
Earlier this year, I learned about autism burnout. Well, I knew it was a thing within myself, but I didn't know it was an actual thing shared by many. One of the things that leads to this state in the constant struggle to not let the world see the way autism affects me.
First off... I know it's okay to be on the autism spectrum. It is! If you're reading this, please understand this. However, growing up when autism awareness wasn't a thing, I learned that I had to be a chameleon to avoid being noticed. This required, and requires, a constant thought process denying what my body needs to meet sensory or calmness needs.
When things get too loud, especially with drums or bass, every ounce of my being is telling me to, "run! escape! flee! I'm not safe here!" In public, this may get a strange look. If I expressed my level of discomfort on the outside, I'd get comments from others and I'd be noticed. To be noticed will start the conversations of, "are you okay?" and then I've got an equally painful conversation that is equal to the pain of the sensory bombardment.
When I get excited, it's a wonderful feeling, but the emotions are too much. I have to vent the excitement, or it'll feel as if it's going to consume me. The way I dispel this is by a stim, or as I like to call it, "the dance of the fingers". You may have heard of finger flapping, but I much prefer the dance. When I must dance, it's because there are exciting thoughts racing through my brain that are very much like a locomotive going downhill at full steam with no brakes. I need a break from such euphoria and by dancing my fingers, I'm able to dispel that rush of excitement. If I don't dance, my insides feel as if they're going to burst out of me in a fury of excitement. See the problem here? If I dance the fingers in public, people look. They always look. Those that know me well, I have no problem with them seeing me as exactly who I am. For those that don't know me well, well, I can't let them see which allows that train to rush down the hill with unabated speed.
When meeting someone new, my body tells me to avoid looking at them at all costs. There's too much info yet it's like trying to play chess without being able to see your opponent's pieces. It's awful, it's tiring, and if I look at the person, I may not hear what they have to say, but if I look away, I am being rude. In certain situation, I must add, there are no issues. On Saturday, Olympic gold medalist, Shawn Johnson East, was the honorary starter for the Indycar race in Iowa, and I had no issues greeting her in the flagstand and prepping her for the start of the race. This is because, when in that position, I'm under my concept of Alias, which is the best chameleon experience possible. It's actually easy for me there because I'm playing the part of starter of the NTT INDYCAR Series. It's outside of an official title I struggle, that I will flee any new encounter, because I can't let them see my avoidance of eye contact and my level of uneasiness.
It's tiring. I know it's okay to be me. I know that I am not weak because of these challenges, yet I'm afraid to let others see it. It only takes one time for something to be pointed out to leave a scar that lasts a lifetime. When we overcompensate and something gets pointed out, this time opposite of the first, we are now scarred on both sides. We neither can nor cannot whatever the thing may be. This very well could be the essence of autism burnout because we have to exert so much level to not let them see while attempting to disregard and override every signal our brains are telling us to do. It's tiring, sometimes degrading, and it's extremely frustrating to know that I should be 100% comfortable with who I am, yet I'll attempt to bear the noise, I'll delay the dance, and I'll flub social greetings all because I'm attempting to hide from the world who I am.
Thursday, July 21, 2022
Evidence of Growth
Traveling yesterday was, well, it was exhausting. Nothing seemed to go right and our flight from Indy to Chicago to get to Des Moines was delayed. The delays persisted and after an hour it was said that we were delayed due to the pilots being locked out of an app that allows them to view the plane’s manual. Frustrating indeed.
We had a scheduled three hour layover in Chicago, but if we missed that flight we couldn’t get into Des Moines at 11PM and we needed every possible minute at Iowa Speedway during the day.
The clock was ticking and the three hour lay over went to two, one, and then it was going to be an extremely tight connection. During the delays I was looking up alternatives which this is where the growth was seen.
I thought back to all the travels I did with karting and USAC in the early 2010’s and I would not budge on what the itinerary would be. What was was going to be. No exceptions. However, I was looking up flight times, drive times, and when we got our flight pushed back on last time we requested our bags be offloaded and we made the drive to Iowa.
It was unbelievable for me to do this. My anxiety used to be so bad with delays, but now I view it simply as it is what it is and can’t be helped. This proves to me growth is always possible. The more life is experienced, the more the ability to accept things that aren’t in my control truly are not.
The biggest sign I had made huge progression was when we were somewhere in illinois and I looked at the dashboard. The gas light… it was on. Greg, who I used to work with in 2006, always ran the pickup truck to the point the gas light was on. My panic would swell each time as I feared the end of the world. That’s what my anxiety level was as I equated running out of gas to the end of everything. Yesterday though? I was in a conversation, looked forward and saw the light on and said, “hey, the light is on” and went right back to the conversation. It makes me smile writing this. Growth is good.
Wednesday, July 20, 2022
Unique flag angle
It isn’t everyday there’s a new angle of myself at work at a race track, but this video on Twitter has a new one!
Tuesday, July 19, 2022
Fearless!
Dennis Tyger with the golf cart photo assist |
It was a glorious morning in Toronto! It allowed for many great photos to be taken, including the one on this post. This put me in a great mood, but I had no idea that the day was going to get better.
As we got up in the flag stand, there were local starters already up there. If you watch any road course race of the NTT INDYCAR Series, you'll see Bryan and I at each race, but there will also be a local starter that assists. They are listening to a different radio than what Bryan and I are on so they can give us information that we may not be aware of yet, and as we introduced ourselves, there was already a sense of friendliness among the locals.
Over the day, between sessions, conversations were had and laughs were plenty, but something came up that involved talking about sensory issues. Perhaps it was my loathing of lotion sunscreen, or maybe something about sounds, but whatever it was it opened up the door to me opening up about being on the autism spectrum.
Being an author on the subject, and having this blog, it's hard to hide the fact that I am. All it takes is one Google search of my name and a person will know. However, going back to that blog in 2010, there's always a bit of hesitation in opening up simply because I have no clue how people will take it. Being told, "I'm sorry..." as I was in 2010 hurts. It hurts a lot. Even though I'm happy with who I am a majority of the time, a distinct response that makes me question if I'm on everyone else's level can quickly make me wonder if everyone sees me in that light.
As I opened up on my being on the autism spectrum the response was... it was awesome. I got the initial response of, "I had no idea" which I will say some individuals on the autism spectrum don't like to hear, but for myself, in this environment, I love it because I can quickly explain my concept of Kansas and that, yes, if you see me in a flag stand you'll probably have no idea, but see me on the sidewalk or somewhere else out in public and it will be rather apparent.
The two starters that were up there, Gloria and Michelle, both started mentioning other individuals they knew on the spectrum, and they both were extremely proud of a local racer who is on the spectrum who is now racing in the Radical series in the US. From there, the conversation went to the nuances of life on the autism spectrum and the joys, challenges, and everything between.
What a difference a dozen years make! On Sunday, between sessions, the conversation shifted to the alarming high rate of unemployment for those with Asperger's, and if everyone were as understanding, and had the frame of reference the two people in the stand had, I strongly feel that number would be lower. 12 years ago, I felt less of a person when someone apologized to me for my diagnosis, but having the response be so open, warm, and accepting made my heart soar.
Each day I wonder if I'm going to have to have that conversation... the one that I explain I'm on the autism spectrum to someone that has no idea what it is or means. It can be awkward, demeaning, and leave a scar that makes me want to stay quiet all the time. Then there's days like this weekend, where there is understanding. My motto when I present is, "understanding is the foundation for hope" and I firmly believe this as I experienced firsthand this weekend. With the experience I had it adds a layer of fearlessness in opening up because there are those that understand. There are those that care, and I hope we get to a place where this is the majority and examples such as the race twelve years ago becomes a distant memory.Monday, July 18, 2022
A Flashback from 2010
For what I want to write to make sense, you've got to understand where we were to understand where we are now. The progression has to be measured so here's a post from an experience I had from 2010.v
Over the past weekend I
was the assistant race director at the Rock Island Grand Prix kart race, the
largest street race in America, and had a most unique, and sad experience.
Several months ago, I
posted an article titled, "I'm sorry..." in which I
describe some of the social issues I know I have and still have issues with.
This, sadly, is not a sequel to that article. This time I was not the one
apologizing.
The Rock Island Grand Prix is one of my favorite race weekends because of how close the audience is. I am not sure at the actual numbers, but the numbers are in the multiple thousands. Why so many? As my photo I took in 2006 illustrates, the RIGP is a street race ran on public streets.
I am stationed in turn
three and after one of the early races a spectator called me over to ask what
my blue flag with orange stripe meant. I explained it and then she asked me if
displaying the blue flag at street races was my day job.
This woman was in her mid
30's, give or take 13 years as I am awful at ages, and I figured this was going
to be a "typical" conversation people have. How fast a conversation
can change.
I told this woman that I
am a Community Education Specialist for a non-profit in the autism field in
Saint Louis. She asked what that meant, and I told her. She asked what makes me
qualified to be in such a position and I told her that I am an author and that
I am on the autism spectrum.
Her response? "I'm
sorry."
I'm sorry? For what? I was
taken aback by that comment, and I was unable to respond. I don't know if I was
offended or saddened. Whatever I was, I was frozen because no one has ever
apologized or expressed sympathy to me for being on the autism spectrum, and
they shouldn't.
Is there that big of a
fear of the word "autism?" I had my sunglasses on and was making
partial eye contact and the look on her face was one of true pity; like I was a
disappointment or a defect.
Words eluded me. I just
stood there oblivious as to what to say next. I now realize that was the prime
opportunity to be a Community Education Specialist. But how does one react when
one apologizes for who I am? I reacted by simply returning to my post some 10
feet away and waiting for the next race to start.
I now know what to say and
that's why I am writing today. There is nothing to be sorry about! I am going
to be honest and say that, yes, there are challenges, but other things come
easy. Most of the time I am happy as can be and have a wonderful time lost in
thought. There are times where the only word that can describe my perception of
social situations would be "confused" but I have grown to accept this
and am always challenging myself to become a little bit more adept at the art.
It is because of my
Asperger's Syndrome that allows me to write. I have one semester of community
college to my credit and there is no obvious reason as to why I am able to
write at the quality and quantity that I do.
It is because of my
Asperger's Syndrome that I have all the race official positions I have. My
reflexes and ability to hyper-focus allows me to excel at these positions.
I am who I am and a part
of me has Asperger's Syndrome. I see it as a strength, most of the time, so
please tell me why you are sorry. It isn't that bad, and I would not trade it in
to be normal even if I were offered an insane amount of money.
If this perception of
autism, this need for this woman to apologize, is prevalent then my job just
become more important. I never once had any event like this happen, and now it
has. Next time someone apologizes to me I will be ready, and I will simply ask,
"Why? I am happy as myself. Do you think I am wrong for being me?"
Friday, July 15, 2022
An Impromptu Concert on Lake Shore
Wednesday, July 13, 2022
The Devastating Evidence of the Work at Hand
Tuesday, July 12, 2022
It Starts with a Rumor
Hopelessness... It starts with a rumor,
Hey, did you know that people with Asperger's won't be able to hold a job?
With a rumor comes misunderstandings,
Hey, did you know that people with Asperger's won't be happy because they can't have friends?
With a rumor comes fear,
Hey, haven't you heard, people with Asperger's are angry all the time and may lash out or become violent?
With too many rumors people become afraid of what they are hearing,
Hey, did you know that person over there has Asperger's? No? Well, let me tell you what I've heard about it and why you should be scared...
That's how it begins. It doesn't take much and it can all start with a rumor; just one little rumor. What may seem like one small irrelevant generalization may lead to a road of more misunderstandings which will, in the end, result in a person becoming isolated because of one little rumor.
With a rumor comes a stated difference. We are all different, but with the wrong rumor the difference will strike fear, and this fear is on both sides of the fence. As damaging as it is for someone who knows nothing about Asperger's to hear the rumors above so too is it for the person with Asperger's.
I was the victim of such rumors. I've said it many times, this story of when I got diagnosed and looked it up on the internet and read, "people with Asperger's will never have a job, never have friends, and will never be happy." After reading that life was to a point that today, tomorrow, and the day after tomorrow didn't matter. And why should it? These rumors had told me that no matter who I was, or how hard I tried, failure was the only outcome.
For parents, these rumors may also have a highly damaging impact. Every parent wants the best for their child, but if these rumors are believed, and if those around them tell them these rumors, how is there a place for hope?
Hope is a critical aspect of life. Hope is, in my mind, the belief that tomorrow will be better than today and that growth is possible. Hope is the fuel that drives us. We all have hopes and beyond hopes are dreams of what the future may hold, but by just small rumors these hopes and dreams are squashed under a immovable weight.
Anytime there is a vast, misguided generalization about the autism spectrum a rumor has begun. A rumor is an odd thing because it may start out with some fact, but as the rumor travels down the line all fact is lost and it becomes like the rumors I started out with and if a person paints a box for a person that person will always appear to fit into that box. This isn't the way the autism spectrum is, but if society believes it to be because of rumors then that's all we will ever be to them and for us on the autism spectrum we will believe this box you have put us in and the cycle begins anew.
Of everything I've written I think this is the essence of my being. I spent fifteen months in that box, that box of hopelessness because of a rumor. Thinking back on those days, still to this day, brings me to tears; my soul had been sucked out and I felt as if I was just an irrelevant being with no purpose or direction. My mission, and everyone's mission should be to quell the rumors. It may seem irrelevant, it may seem small, but it paints that hideous box and if those around me believe those rumors then why should I believe otherwise. If you tell me I won't have friends then I won't. If you tell me I won't have a job then I won't. If you tell me I will never amount to anything because of Asperger's then the battle is already lost and human potential has gone wasted. It may seem small, but hopelessness starts with just a rumor, one small, seemingly irrelevant rumor.
Monday, July 11, 2022
The Curious Problem with Having Cake and Eating it
It is widely known that those on the autism spectrum often have a hard time with figures of speech and the like. I personally don't have a horrible time at this, but there are a few saying out there that I have trouble with. However, when it comes to certain proverbs, I have a horrible time and there has been one that I've heard for a long time but never thought of until last Friday.
Watching a race yesterday, I heard the saying, "You can't have your cake and eat it too." This line makes no sense to me on a literal level because if you were to have the cake wouldn't that entail you eating the cake? I mean, what good is cake unless you are going to eat it? Of course, if it's an awful flavor one wouldn't want it at all.So, you can't have the cake and eat it too. I struggled with this, and it was the only thing my mind could think of because I was trying to find the logic in it which my mind was convinced there was none. And the more I thought about it the more it made no sense.
Minutes went by and I thought for a second that this might mean that, once you eat the cake it is no longer there. But what happens if you only eat on piece of a whole cake? The problem with proverbs and figures of speech is that we can view them visually and literally; there may be a valid point that is brought up in a proverb but it's going to be lost. Speaking of lost, I'm always lost in regard to gift horses.
I eventually came to the conclusion that the flavor of the cake doesn't matter, how much cake doesn't matter, the only thing that matters if that you can't have your cake and eat it too. What this meant was I was right back to square one having no idea what it meant. So out came my phone and to the Internet I went to try and decipher the meaning of this cake.
The origin of this cake dates back to 1546! This was news to me because that was a long time ago and who knew they had cake back then? If you said that you did that's fine, but I had no idea. This little fact that meant nothing because cake now or cake then is irrelevant because why can't a person eat it and have it?
I finally read one line that made everything make sense and it wasn't that difficult. You see, the problem with cake is that it's complicated and can have multiple layers (Ha! That line just happened randomly. I swear.) whereas it would be so much easier to say what you mean and mean what you say because this line I read translated this cryptic saying by stating, "you can't have it both ways." Now was that overly difficult to explain? Why come up with some saying that can 1. make you hungry 2. makes no sense and 3. can be explained in a much simpler format? It makes no sense to me, and this is the essence of why there is now a serious problem with proverbial cakes.
Friday, July 8, 2022
The Myth of Casper
What if I were to tell you that the grandest city in the world is Casper, Wyoming and that no city is like Casper. I'm sure residents of there would agree, but this is a metaphor so bear with me. Anyway, the roads are perfect, the restaurants all serve the most exquisite of foods, and the residents are the friendliest bunch of people you will ever meet. The art district has more museums than you could visit in a week and the shopping district has the hottest deals known to mankind. Sounds like a great place, right? Now what if I were to tell you that you will never be allowed to visit Casper, Wyoming? This is what happens when is told that they will never be capable of something.
Thursday, July 7, 2022
Leveling Up
I understand not everyone knows or plays chess so the image to the right may not makes sense. In this example it is black's move but no matter where they move their position will be worse. The best option would be to not move if it were allowed but move, they must which will allow the white king to attack one of the sides getting position thus making black's hopes at a win almost nil.
Wednesday, July 6, 2022
The Salt Equation
Tuesday, July 5, 2022
The Name Game
Working the Indycar weekend from Mid-Ohio a couple days ago led me to an interesting thought as I was conversing with my co-starter Bryan. Mid-Ohio is a unique track at the start of the race because the start line is different from the finish line so one of us had to travel to the other stand. Anyway, as I got over there for the start of the Indy Lights race, I got on my radio box which serves as an intercom and said, "Bryan, can you hear me?" Why is this relevant? It was then that I realized I used a name.
Names are personal... too personal. In someone's presence I will not use a name. To get someone's attention I'll typically raise one hand halfway as if I'm about to say something to get a person's attention. If I'm behind a person, I'll wait for them to turn around before speaking so as to not have to say a name.
I've always been this way dating back to school. Using names is something I've always been afraid of and when I did my sunglasses experiment in 2010, I theorized that it's akin to eye contact in that it's the essence of someone's being and to try to comprehend that is too much information for my brain to handle. How then is it so easy to ask Bryan by name if he can hear me when we are half a track apart?
I learned to have a conversation via Xbox Live and racing people from around the world. I had no problem calling people by their screennames and eventually their real names as I got to know them and met them outside the virtual world. There too, when I met them in real life the usage of real names went away. As I write this, I'm now convinced more than ever that, for me, eye contact and usage of name is one in the same that it's too much info. Of course, with eye contact the info is processing the physical appearance and all the nonverbal cues that come with it, but there's also the look into the soul which is also exactly what a name does.
There are many people on a race weekend I'll say by name over the radios. This is easy for me and is done without thought. Those same people in person won't have their name spoken by me and it's awesome to finally understand this and to be able to tie the usage of names with the same system in place that makes eye contact difficult.
Saturday, July 2, 2022
A Bee Video
Yesterday morning during practice at Mid-Ohio, a carpenter bee landed on my yellow flag and allowed me to take an incredible video.
I never saw these creatures as anything but a threat, but seeing the movements much like my cat does… it made me smile to see .