Tuesday, February 28, 2023
The Myth of Everyone Else
Monday, February 27, 2023
1,000,000 Reasons to Smile
After my post last week, I went full hyper-Kansas on reaching the million-point total of Xbox Gamerscore. It became difficult to focus on anything else but the goal. I can't recall the last time I experienced a hyper-Kansas, but it felt exhilarating!
A state of hyper-Kansas is rare, but when it is experienced it may last for a day, a week, or sometimes a month or longer. During this event, it is almost impossible to achieve anything that doesn't relate directly to the goal at hand. Think of this way; the light at the end of the tunnel is the only thing that matters. Food may be forgotten, daily tasks may be skipped, and sleep schedules will most certainly be disrupted. At the same time this is goal achieving at its finest but also a major block of achieving anything else.
From my discussions with people at my presentations, those not on the spectrum can't fully experience the sheer bliss of this. Yes, obsessions can happen, or an interest that evoke strong emotions for a short time, but the event of something encompassing their entire being and the sensation of bliss that comes with it is something that I haven't heard those not on the spectrum explain like those on the spectrum can.
My fiancé yesterday asked me, "What are you going to do with all your free time now?" which the question isn't that far off as, since about the start of the pandemic, the quest for Gamerscore has been a real thing. There have been so many amazing games released in the past four years that deserve to be played, but I've been playing other titles such as "Horatio Goes Snowboarding" and "Butterfly". So, not only will I have time for the quality titles that aren't shovelware, but I'm also going to be saving tens of dollars by not getting all these $1.99 titles for the sole purpose of Gamerscore.
There is a strong sense of freedom today. My 400+ day streak of getting at least one achievement may or may not get extended, and I'm okay with that. I can start a quality title. I can experience games, once more, of not having to look at what side quests I should or shouldn't do as one may offer an achievement, and the other one may not. My life will no longer be dictated by upping a point total that no one else cares about. The race to a million took since December 2005, but now freedom from the most destructive thing to hinder the way games are played are past me. It's time to be free. It's time to move on, and I can't fully explain how happy I am that the next hyper Kansas won't be related to increasing the Gamerscore total.
Friday, February 24, 2023
The notes of angst
Wednesday, February 22, 2023
The Final Achievement
I'm almost there. It's been a journey since December 2005, but sometime this year the journey will be over. What journey? The long road to one million Gamerscore.
Gamerscore are points awarded for achieving various things within each game that the developer of the game put forth. When Gamerscore began, it was difficult to get a full 1000 points from a game. On Call of Duty 2, this required beating the game on the hardest difficulty and there were so many levels with tanks that seemed to know where you were at all times.
Gamerscore has evolved though. Some games have gotten tougher and require an almost monk-like dedication to the task. And then, there's the opposite. The opposite is what sucked me in.
I'm a Gamerscore addict. The website, trueachievements.com, tracks a gamer's Gamerscore. I know these points mean nothing, and they're more irrelevant than ever with games that you can amass 4 or 5 thousand Gamerscore in this 10 minutes. And some of the games that'll be a quick 1,000? I'm ashamed to have played them because they are so bad.
I always liked the sound of Microsoft's "beep-boop" of an achievement being unlocked, but since the start of the pandemic I've been dedicated to increasing the point total no matter what. Bad game? Don't care. New game that's got a complex story and everyone is talking? Nope, don't care. Give me the achievos. This became too much so I'm changing this.
1,000,000 is a big number and I still want it. After I get there, though, I'm retiring from anything related to Gamerscore. Completions, ratios, achievement percentages... I won't care. There are so many worlds that developers have made that deserve to be explored, and so many bad games that don't deserve to be seen by anyone. At the rate of devolving, and Gamerscore inflation, I'm awaiting a game that simply awards a 1,000 point, full completion, for simply pressing start.
The past week I've been on a marathon of clearing out the easy achievements in my gaming library and also searching out quick completions. I may have complained about it, but this is something that must happen to get to a million. It's been working, I've gained almost 60,000 points which, I looked it up, it took me five years to get that from when Microsoft made Gamerscore. It's a sprint now, there's still about 75,000 to go, but I'm driving of the moment, that the game makes the achievement unlocked noise, and I'm free of this irrelevant system and I can move on.
Monday, February 20, 2023
To tell a joke
Thursday, February 16, 2023
“Have a Good Life”
I received several hundred letters from the students of a school I presented at last month. One kid finished his letter with words that stopped me in my tracks and took me back several years. At this moment, I’m not sure if there’s anything more haunting than, “have a good life” so here’s the first time I blogged about that phrase…
Yesterday was a long day for me. I got home at 1AM Monday morning and just five hours later my dad and I were headed to the Washington D.C. Metro area to go to my aunt's for Thanksgiving. The weather of the drive was not good and once we hit central Kentucky it was rain all the way (I followed the system that gave the Supernats so much rain.)
All along I had it in my mind to stop at the Roy Rogers in Cumberland, MD. I ate there with the USAC staff on the way back from the race in Hagerstown and wanted to do so again. My dad had mentioned his first roast beef sandwich had actually been from a Roy Rogers. Anyway, we get there and before we ordered my dad struck up a conversation with someone that was eating. This person, I guess, was from the area (I came into the conversation a bit late) and was talking about the excess of accidents that were happening due to the poor weather.
We ordered and sat down and the conversation continued on. The fact that there was this conversation was odd for me because I don't talk to people I don't know in a setting like this. And yet, watching it, created a flood of emotions. Who was this person? What was his story? I don't know if empathy is the right word, but I had so much wonder that it was overwhelming.
As we were almost done eating this man and his wife got up and started to leave. They talked about grabbing food for their "girls" at home and he started to say goodbye to my dad when my dad replied, "have a good life" and with that one singular line I lost it.
When the man and his wife left my dad turned back towards me and said, "Aaron, is something wrong? You look as if you're about to cry." and he was right; I was. There was so much stuff going through my mind that I couldn't control my emotions. This was such a difficult time because with that line the realization that this moment was lost to time and that this man who shared road conditions and showed a true caring on our well-being was gone. Will I see this person again? I knew the answer, statistically, was a resounding "no."
I tried to refocus my mind but it wasn't possible. There were other moments in my life like this and the biggest one that comes to mind was when I was perhaps eight years old and so and we were driving back from my grandma's in Nebraska to home in Indianapolis and my dad was talking to this trucker on the CB radio. This conversation lasted for many, many miles and eventually one of us took a exit and goodbyes were said and I knew the finality of this moment and I didn't take it well.
Is this empathy? I truly wondered who this man was that was wishing us the best. Why couldn't I breathe? Was it too much emotions, or feelings? I had to do everything I could not to just break down and this was odd because 15 minutes prior I didn't even knew this man existed and now he was gone. Is this another reason I try to keep my world small? Because, if it is, then moments like this won't happen and moments like that are to the brink of being overwhelming.
As for now, and today, the Thanksgiving traditions of the past 13 years will take place but my mind is still back in Cumberland at that Roy Rogers in the pouring rain with a bone piercing chilly wind. Who was that person? What type of life had he lived? So many questions but the answers will never be told.
Tuesday, February 14, 2023
To the person that said “Aaron, you can’t have a bad day”
A long time ago, someone told me, that as a presenter and blogger, that I could not have a bad day. I, unfortunately, took this to heart.
Here’s the thing, going back to the 40 things I wish I knew, it’s okay to have a bad day. To have anything less would be to not be human. Everyone has a bad day, everyone goes through slumps, and everyone will get scared at some point in time. When you add the autism spectrum on top of that, it makes it even more of a reality.
The news of the past week leads a lot to the imagination without being able to make sense of what, exactly, is going on. Balloons, ufos… it’s all so… Hollywood.
The past couple days I’ve struggled with this notion that I’m not allowed to be worried. It’s not a pleasant feeling both ways; to be worried AND think I’m not allowed to be.
So, to the person that told me that, I hope you haven’t told anyone else this. I hope you haven’t disregarded another person’s emotions and made them question whether or not what they feel is valid or not. Those on the spectrum may already feel as if their emotions are invalid, but when someone blatantly says they should not feel that way.
Whatever the case may be now, with the mysterious things above, or whatever the worry in the future may be, no one should be told that they shouldn’t feel as that anxiety can be worse than the anxiety itself.
Thursday, February 9, 2023
40 Things I wish I knew...
Last week I turned 40 and on that day I thought, “wouldn’t
it be great if I could tell my 10-year old self all the info I know now?” That
led to thinking it would make a great blog so here we go, here are the 40 things
I’d tell my younger self…
40. Don’t bite off more than you can chew: It’s easy
to think that you can be Superman but committing to large things before
thinking it through can lead to difficult projects. For example, coming up with
40 things right now.
39. It’s okay to be good at something: It can be
difficult to be good, or exceptional, at something. It can truly be
discouraging to feel isolated because something comes easily. However, you must
understand that it’s okay to be good, and whatever topic, subject, or activity is
something that you enjoy, and are good at, should be something to investigate
if it could lead to a career.
38. It’s okay to be bad at something: If can be
difficult to be painfully bad at something. You mustn’t allow this to become
your identity though. As much as you’ll want, you won’t make a good hockey
goalie and you won’t be the next gold medalist at the alpine downhill. Sports
dreams aside, it can be bewildering that some things may come easily, and yet
other things that come naturally to others will be a challenge.
37. Those normal people? They don’t have it all: You’re
going to chase normal in the future. You’re even going to understand it, but
you’re still going to do it. You’re going to chase what you perceive others
have, but no one has it all. When you chase the myth of normal, you’re going to
forget who you are and what makes you special, but as painful as these moments
are, you will make it out the other side.
36. It’s okay to ask for help: Maybe I should tell my
current self this as this is a challenge. However, wouldn’t it be better to ask
for help now, than to make a mistake and have to fix it later?
35. Others may not know you need help: Why is it hard
to ask for help? You don’t understand this now, but others don’t know what you
need by pure chance. This leads us to #34.
34. You will understand the difficulty of “I think
therefore you should know”: Later in life, you’ll say this is one of the
five most important topics the world has to understand about autism, but for
you it won’t come naturally. Just because you think something or know something
doesn’t mean everyone else does. If something is bothering you and you don’t
say something, the other person won’t know it even if you think they do.
33. It isn’t if you win or lose the game, it’s that you’re
playing the game: Games are amazing, and at the age of 10, you’ll think
winning is everything. You’re going to love the cutthroat ways of Monopoly and
Risk, and there will be an extreme frustration when victory isn’t achieved, but
eventually you’ll realize that the joy wasn’t in the victory, it was sharing a
game and thought with other people.
32. It’s okay to be late: You’re going to struggle
with this. You’re going to show up 30 minutes early to everything, but this may
not be how others live, and that’s okay. You’re going to have two choices;
worry about the timing of others and check the clock every 30 seconds, or
accept that the world doesn’t have the fear of being late as you do and live
with it. When smartphones are made, this will become easier.
31. Even when you’re right, you can be wrong: This is
as involuntary of a reflex as breathing, but people will get annoyed when you correct
them or facts they mess up. You may not be able to stop, but they too may not
be able to stop with getting mad.
30. Real friends are blessing so stay in touch: If
someone, “gets you” it’ll be good to stay in touch. It sucks to think, “whatever
happened to…” 10 years after talking to them last.
29: Yes, people will get you: You’re going to spend
many years wondering this, and at the darkest bits of night when you think this
you’re going to think that it’s impossible. This is when #37 will come into
play, and you’ll dream and chase normal, but as you get on the other side of
this you’ll learn the importance of the next point.
28: Whatever is now is forever: This is joy, and it
is pain. When things are good, they will feel as if they’ve always been, but
when they are bad it will be inconceivable that they can ever be good again.
Pro tip: things can always get better.
27: Whatever happens first always has to happen: You
don’t fully understand it, but you’re going to live for routines. This statement,
which will be a top 5 statement you’ll say everyone will need to know, is
important for you to understand because if something that bothers you happens,
and happens again, you may become mired to an unwanted routine. Know this,
understand it, and when need be fight it.
26: You can’t please everyone: Others will think you’ll
want to please everyone for the sake of it, but your true motive is that, if
everyone is happy, you can avoid unwanted social situations. Those situations
will arise, but you’ll survive.
25: People will know when you take shortcuts: In the
future, when you make a list of 40 things, if you come up with, say, filler,
people will notice, as they’re noticing right now.
24: Hide the phone on Christmas: Your intentions will
be in the right place, but you’re going to be the only one who understands why
you broke up with your girlfriend on Christmas via text message. Look, if they
liked you before the text, they’re not after such a stunt is pulled.
23: A broken heart sucks: There’s no sugar coating
this one, it hurts. You’re going to feel as if you’re the only one who has felt
such pain, but you’re experiencing the same thing all “normal” people go through.
It may feel like a dark tunnel that you’ll never escape, but I promise you
there’s light at the end, and it may just be more glorious than you can
imagine.
22: Others in the workplace may not have your best
intention in their hearts: You’re going to be overly trusting, but the
workplace can be akin to CBS’s Survivor game show. You won’t be able to
comprehend why right isn’t right, and why others may do all they can to
seemingly destroy what you have. One of the things that so many others life yourself
have is a natural, naĂŻve sense about them, and when others tear you down, you
may never understand why they did it.
21: Forgive: It will be difficult, if not seemingly
impossible to forgive others. With “whatever happens first” and “whatever is
now is forever” will make any transgression against you feel like a
world-shattering moment. Here’s the thing, after a couple years the other
person may have totally forgotten what event it is that you’ve been carrying in
your heart all this time.
20: Do what makes you happy: Job burnout will be a
challenge. The thought of a 40-hour work week will be intimidating and will
feel like it’s something you’ll never be able to endure, but when you end up
working with the NTT INDYCAR Series, a 90-hour work week will be something you
look forward to. Honest!
19: Embrace Kansas: You’ll someday write a book
called Finding Kansas and you’ll describe Kansas as, “that one place where
I feel normal.” That place will be a topic, or activity, that is what your
brain thinks of at all hours of the day. Few people will ever experience the
joy that you’ll experience when immersed in learning everything there is to
know about a topic, or why you like something that may seem repetitive to them,
but embrace it, love it, and cherish the times something kicks into a hyperKansas.
18: Cherish animals: You don’t fully understand it
yet, but you and animals are going to have a special thing. You get them, they
get you, and you will have a knack for “stealing” other people’s pets. Oh, and
don’t let the time a German shepherd jumps over a fence and takes a few bites
of your knees ruin that bond for too long.
17: You’re living life unfiltered, and it’s exhausting: You
have no idea how others in school aren’t as exhausted as you at the end of the
school day. They seem to have an infinite power source in their hearts whereas
you are going to want to decompress at the end of the day. The reason this is,
is that you’re processing everything around you and don’t know it. It takes
more effort to pay attention to what you need to pay attention to.
16: There’s nothing more heart stopping than the words, “we
need to talk…”: No matter how many times it’s proven that the end of the
world doesn’t happen after this sentence, you will still fear it each and every
time.
15: Don’t let the diagnosis define you, help define it: The
worst day of your life will be when you’re diagnosed on the autism spectrum. It
isn’t because of the stigma society may have, but rather you are going to read,
“people on the autism spectrum will never have friends, will never have a job,
and will never be happy.” So, some advice, don’t look up medical info on the
internet in 2003. Oh, and you will have friends, some amazing friends, you will
have jobs, perhaps one of the coolest jobs on the planet, and you most certainly
capable of happiness and pure joy.
14: Beware the sensory episodes: Not everyone on the
spectrum will have the reaction you do, but when the wrong sensory element is
experienced by your brain, it will feel like hell. The first couple times you’re
going to hide it from everyone, and this is just going to make it worse.
13: Learn how to live with operating under the system of
being logical in an emotional world: Others may question if you even have
emotions, but you do. Oh, how you do! But, amid events you may take a logical
position and ask seemingly cold and callous questions. This system will lead to
the Christmas cellphone incident, and try as you might, others just won’t
understand.
12: Don’t be afraid of the world: There will be an
incident at the bowling alley that will inspire you to write, “people are mean,
people are awful, and they aren’t worth knowing.” Understand that others may be
emotional in your logical world. As much as you try to be alone, some of your
grandest moments will be because of the interactions with others.
11: Thank people: You’re going to come across others
that open doors you never thought possible and see things in you that you never
would’ve seen. Thank these people in the ways that you can because, after all,
odds are you’re going to avoid the social interaction of saying it in persona and
you may, right as you turn age 40, come up with a list and say you need to
thank others and that “they know who they are.”
10: Learn from others: It will be in 2005 or 2006
that you’ll see Temple Grandin speak. This will change your life as you realize
that you can be anything. Before that day, no matter who it was suggesting you
read other people’s works and stories, you won’t because your heart is still dark
from the belief that your life is predestined and not being happy is the only
outcome. Try and learn from others and know that failure isn’t guaranteed even
if you say it is.
9: Try and express yourself before your aged 22: One your
blackest night, you will sit down at a computer and write. No one suggested it,
no one asked for it, but you’re going to write your life story and explain
yourself emotionally. Before that time, your family may have only thought that
you experienced frustration, so try and show them the true scale of emotions
before then, even if talking about emotions was, and still is, something you’ll
try and avoid.
8: Learn how to cook: Eventually, there will be this
amazing thing called DoorDash and you won’t have to do anything except click
some buttons and food shows up at your door. However, it’s expensive and had I
only learned how to cook and understand directions earlier, perhaps a whole lot
of dollars could be saved.
7: Interact with people who have your same Kansas: You’re
going to learn how to have a conversation in the oddest of places as in 2004,
ToCA Race Drive 2 is going to be released for the Xbox, and you’re going to try
and avoid talking, but you’ll learn that others playing a racing game enjoy
racing as much as you. These skills will be gigantic later on.
6: You can’t change people: Other people have opinions,
and you may think they are wrong, but it’s fruitless to go on a long, drawn out
endeavor trying to change their minds.
5: Things won’t go how you’ve planned them: Right
now, you have this idea of how life will work out, but it isn’t going to work
out any way you thought it. This doesn’t mean it’s bad, so be prepared for
that. We can end up where we need to be and be put on a pathway to get there
without any knowledge that we were on that path all along.
4: Act like you already have the job you want: You
wanted to win the Indianapolis 500, but you also want to flag the Indianapolis
500. From the first time you’re racing on a track, or flagging, be dedicated as
if you’re already there. Don’t save your effort and await to give it your all
at the Indy 500, instead give the effort as if you are already there. You may
not think it, but passion and dedication are something other people pick up on
quickly.
3: Don’t succumb to peer pressure: You may never
figure out as to why others will try and change you, and there is something to
be said about sound advice, but some will try and change you just for giggles.
They may come off as your friends, but they may be anything but.
2: Joy to the world: When people have talked about
me, I’m amazed at how much of a part I’ve played in other’s lives when I
thought I was invisible. Just as you have a hard time expressing yourself,
others too may not let you know just how much of a joy you are.
1: If you’ve met one person with autism… Your story
is going to be unique. No one is going to have the same path or ride in life as
you, but so too you won’t have others. Some are going to excel in art, and you
are still carrying around the badge of shame of achieving an F in kindergarten
art. Never think that another person on the spectrum should be you, or that you
should be them. Drums will be the worst sensory thing you feel, and yet you’ll
meet a mom that has three daughters and they are all drummers. It will be
confusing, and after seeing Temple Grandin you won’t have heard of the sentence
that, if you’ve met one person with autism you’ve only met one person with
autism, but this will be the most important thing you’ll ever hear and it will help
you carve out your own story, and your own destiny.
Tuesday, February 7, 2023
The Names of the Past
Saturday, February 4, 2023
Thoughts at 40
It’s 10:49 at night. I look out of the hotel window and reflect on the 12 hours of travel today. I’m in Paris for the night on my return trip home, and I turned 40 today.
I have feared this day since I turned 30. It didn’t help that, a few days after turning 30, I presented at a school in Doniphan, Missouri and a sixth grader asked how old I was, and after I mentioned that I had just turned 30, she said, 30?! EWWWWW!” I wonder how she would’ve reacted to 40…
But yes, I have feared this number for ten years and its scope grew to something much larger than what it should’ve been. In my 20’s, my age was a reminder of everything I hadn’t done, and probably never would. That’s how I saw life. I didn’t see it as a life full of potential, but rather a constantly ticking time bomb to the next let down, the next tragedy, and the next opportunity unfulfilled.
40 is a big year, but not in the way you think. This year will mark 20 years since I got diagnosed. This year will mark the passing of more years knowing that I’m on the spectrum than not.
On the long flight today, I reflected on my life and just how fortunate I am. I’ve said this many times, but I wish you could go back and see me in 2005, right as I started my writing journey. I never thought I’d be capable of travel, and employment, and if you saw me then you might have thought the same. Somehow I made it through the pit of depression that happened at my diagnosis and somehow, others saw potential in me that I never thought possible.
I no longer see 40 as a number to be feared. I’ve made it this far, I’ve been blessed with so many readers and attendees at presentations, and I have one of the coolest jobs on the planet as a starter for the NTT INDYCAR Series. The change from 30 to 40 has been immense and I’ve lived so many seemingly impossible dreams, so I can’t wait to see what I can achieve this next decade. I can’t wait to see what venues I present at, and what types of changes happen in society so that all on the spectrum can reach their full potential. And, most of all, that sixth grader from 10 years ago will be turning 30 in about eight years so I hope she thinks back to that February day in Missouri and, for a moment, says “EWWWWW!” as she thinks about her age. She too will realize, it ain’t so bad.
Thursday, February 2, 2023
Relocation Theory: a Thought
It was back in 2006 while flying towards Paris as I looked down at the lights of cities in Ireland. Like a sudden wave, I was flooded with this idea and wonderment on if I could “make it” down there. If I was transported down there, would I be able to navigate, communicate, and survive in a foreign land? As time went on and I evolved this thought I came to believe that the only real way I could expand my skill set was in this relocation example because I would need to delete all the existing routines I had to allow new ones, and new skills to develop. Today, though, I wondered if this was too shallow.
Today, while being hit with waves in the Indian Ocean as I was snorkeling, I wondered why I had the ability to develop new skills in new areas. Was it simply the deletion of previous routines? As I say in my book, Finding Kansas, “firsts” are of the utmost importance and “whatever happens first must always happen.” This makes it quite crowded for new things to develop so, to supersede this, there must be a new environment. As I saw a school of Moorish Idol fish fight over a hiding spot in coral, I began to wonder if it isn’t the deletion of routine, but rather the deletion of fear.
Yes, when I’m talking about firsts I so often talk about routine of day, or foods to order, but there’s also a menu of firsts on daily dangers. Has a certain pair of clothing shocked you repeatedly? Have you been burned by water that was too hot coming out of the tap? Have you ever fallen on black ice? If you said yes to any of these you check twice for ice, you barely touch the water before you commit to putting your hands on it, and in terms of static, well, hopefully it isn’t too shocking, but in all of these examples you have this fear that’s attempting to protect you. So too, does my body do this with social situations.
In a foreign land I am unaware of the social barometer. I’ve always been a barometer of the room and if tensions were going up, say in school, the upping pressure would drag me down and I’d be fearful for whatever outburst was coming up next. It’s odd, isn’t it? The fact that I’m poor at reading facial expressions but the ability to be a barometer for the tension in the room. It’s true though, the dragging down impacts all of my body’s ability to process. Here, in RĂ©union, this doesn’t exist. However, as the sun beat down on my back and already sunburned legs today as I pondered the dangers of a stonefish, I wondered if this could last.
If I were in any place long enough, wouldn’t logic dictate I’d eventually have an ice experience (maybe not here in a literal sense) or too hot of water? Eventually, I would learn some French words if I stayed here forever, and I’d learn the difference between French spoken in a conversational manner and French spoken in an angry tone. If this is accurate, then eventually every place would have the same fears. However, and I don’t have the answer to this, would the personal gains made when traveling somewhere new outlast the new fears that take over? Is it truly the relocation that creates the growth I’ve experienced, or is it a naivety to the same social stressors that exist anywhere but simply can’t be processed or understood due to language and cultural differences? It’s an interesting notion, one I hope to dwell on and come up with more answers down the road.